What other advanced and effective treatment options are available for ESES (a rare sleep-related seizure disorder) now that Valium, Diamox, and steroid infusions have not worked, and we are unsure about trying oral steroids?
Since Valium, Diamox, and steroid infusions weren't successful, other advanced options are still available. Doctors often consider other antiseizure medications such as clobazam, valproic acid, levetiracetam, or ethosuximide. Dietary therapies, like the ketogenic diet, can also be very effective for ESES. In some cases, intravenous immunoglobulin (IVIG) therapy or even specialized surgical evaluations are explored. Please discuss these alternatives with her pediatric neurologist to find the safest and most comfortable next step for her.
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What other advanced and effective treatment options are available for ESES (a rare sleep-related seizure disorder) now that Valium, Diamox, and steroid infusions have not worked, and we are unsure about trying oral steroids?